Good news today, Logan has gained 6 ounces this past week! He is officially 11lbs 13oz! This is the improvement that we were hoping for and are thinking that the last couple weeks the weight loss was due to Logan being under the weather. The dietitian agreed to come back in two weeks to give us a week break and we will see how it is going from there. The doctors had been hoping for at least 17grams a day in gain but Logan has surprised us all with about 25grams a day this week!
Thanking the Lord for His sustaining grace and constant care of our precious Logan.
(written by Aunt Kathleen, as Jenn and Adam's internet is still down!)
Tuesday, 26 February 2013
Saturday, 23 February 2013
Up & Down
I know its been a couple of weeks since I last blogged. I probably should have blogged last week, however I was in a slump. I was really not in the mood to share the news that Logan happened to lose 5 ounces. I felt like this was becoming a routine of writing the same thing from week to week. We were shocked as that is a pretty big loss from what he was up the week before! He was weighed last Tuesday, February 13th and much to our dismay he had indeed lost putting him at 11pds 7ounces. I was a ball of mixed emotions. My dietitian reassured me that there was no need to panic, sometimes babies that have a hard time gaining weight will go one step forward, two steps back, until they can get to where they need to be. We had also increased his feeds quite a bit in hopes that he would gain, but this just made him vomit more which also contributed to the weight loss. Our dietitian Brad told us to drop him back down to 100ml per bottle and just bump up the night feeds on the g-tube (as he seems to keep that all down) and also to try to introduce rice cereal again.
On Thursday, Feb 14th I took Logan back to Mac for our g-tube follow up appointment with Dr. Bailey. She was pleased with how everything looked, although there was no infection he did have a weird growth of skin growing around the gtube hole & it was slightly red so they cauterised it just to be safe. The nurse told me its ok if he screams it's normal that most kids will cry when they put silver nitrate on a wound. Logan just looked up and smiled at her the whole time...go figure. He must have one seriously high pain tolerance!
Over the family day weekend we spent alot of time out & about, so of coarse on Monday night our family started out with some sort of bug. Olivia has managed to avoid getting it, but the boys got a weird virus. Mostly just alot of diarhea & runny noses, but Logan was also vomiting excessively (alot more then normal). Logan definitely got hit the hardest, we could tell he was fighting something. Our chiropractor even mentioned that Logan must be fighting something because his spine was quite rigid & tense (this was before we even had a chance to tell him that Logan was fighting against something!). That night Logan screamed for a good 3 hours and NOTHING that we did for him made him happy. On top of it Logan also had something this week called "Fifth disease, or erythema infectiosum...a mildly to moderately contagious viral infection. Fifth disease usually begins with the distinctive, sudden appearance of bright red cheeks that look as though the child has been slapped. He had this really bad on the right side of his face, I almost didn't dare take him out in public. It's been a long week, he finally started to become more like himself as of Friday. Here's to hoping that Adam & I don't catch anything now!
Logan was also weighed this week on Thursday (Feb 21st). We braced ourselves for another huge loss seeing as he has been sick all week. Well we were wrong, somehow, for some strange reason he actually managed to gain ONE OUNCE! Whaaaat??...its not much but I'll take it!! Logan never ceases to amaze us with his results from week to week. We think that he was on the right track of gaining and then lost weight with being sick, so maybe next week will be much better now that he's on the road to recovery! Our dietitian comes next Tuesday for another weigh in and I will do my best to update you all by Tuesday evening and not take so long this time. Praying for better results next week!
On Thursday, Feb 14th I took Logan back to Mac for our g-tube follow up appointment with Dr. Bailey. She was pleased with how everything looked, although there was no infection he did have a weird growth of skin growing around the gtube hole & it was slightly red so they cauterised it just to be safe. The nurse told me its ok if he screams it's normal that most kids will cry when they put silver nitrate on a wound. Logan just looked up and smiled at her the whole time...go figure. He must have one seriously high pain tolerance!
Over the family day weekend we spent alot of time out & about, so of coarse on Monday night our family started out with some sort of bug. Olivia has managed to avoid getting it, but the boys got a weird virus. Mostly just alot of diarhea & runny noses, but Logan was also vomiting excessively (alot more then normal). Logan definitely got hit the hardest, we could tell he was fighting something. Our chiropractor even mentioned that Logan must be fighting something because his spine was quite rigid & tense (this was before we even had a chance to tell him that Logan was fighting against something!). That night Logan screamed for a good 3 hours and NOTHING that we did for him made him happy. On top of it Logan also had something this week called "Fifth disease, or erythema infectiosum...a mildly to moderately contagious viral infection. Fifth disease usually begins with the distinctive, sudden appearance of bright red cheeks that look as though the child has been slapped. He had this really bad on the right side of his face, I almost didn't dare take him out in public. It's been a long week, he finally started to become more like himself as of Friday. Here's to hoping that Adam & I don't catch anything now!
Logan was also weighed this week on Thursday (Feb 21st). We braced ourselves for another huge loss seeing as he has been sick all week. Well we were wrong, somehow, for some strange reason he actually managed to gain ONE OUNCE! Whaaaat??...its not much but I'll take it!! Logan never ceases to amaze us with his results from week to week. We think that he was on the right track of gaining and then lost weight with being sick, so maybe next week will be much better now that he's on the road to recovery! Our dietitian comes next Tuesday for another weigh in and I will do my best to update you all by Tuesday evening and not take so long this time. Praying for better results next week!
Friday, 8 February 2013
Another Week Gone By
Last week Thursday I met with Dr. Issenman in the GI clinic at Mac. We waited 2 hours to see him and got all of 30 seconds of his time. He barely looked at Logan, didn't take any time to answer my questions & to be quite frank, was very ignorant. I spent more time with the dietitian then I did with the doctor, which seems absurd seeing as everything she told me was identical to what our in home care dietitian had been saying too. In the end I asked that we not have to come back every other week for no reason seeing as it is a waste of my time & $15 in parking. Dr. Issenman agreed that we can wait a couple of months & do another follow-up in April. In the meantime we will be working on changing things with our dietitian and taking Logan to the chiropractor (which is the only thing that seems to be doing something positive for him!).
Today was supposed to be Logan's weigh in day, however due to the weather our dietitian couldn't make it. He comes from Waterford every week and I told him it just wasn't worth risking the drive just for 15 minutes at our place. We will have to wait until Tuesday next week to find out where Logan is at on the growth chart. I am ok with waiting a few more days, its almost a relief to not have to keep checking the scale every week!
We feel fairly confident that Logan must be gaining though in the past week. The main reason being that he has been vomiting alot less and he is starting to take more volumes at his feed. He's only started taking an extra 10-20ml per feed, but for Logan this is a great step in the right direction. Baby steps....this is what we do each week, but someday he will catch up just like Malachi did :) We definitely have our challenging days just like any normal family, but the Lord continues to grant us much strength each day to take up our tasks that He has set before us in this season of our lives.
Next week Thursday we go back to Mac to meet with Dr. Bailey, as a follow-up for the g-tube. She just wants to take a look at it to make sure there is no infection & see how things are going with it. We look forward to meeting with her again, the woman has a heart of gold & has a passion for what she does. I will update the blog next week once we know for sure what Logan's weight is up to.
Until then enjoy the breath-taking beauty of God's creation in this snowy weather that we've received and we hope you all have a wonderful weekend.
Today was supposed to be Logan's weigh in day, however due to the weather our dietitian couldn't make it. He comes from Waterford every week and I told him it just wasn't worth risking the drive just for 15 minutes at our place. We will have to wait until Tuesday next week to find out where Logan is at on the growth chart. I am ok with waiting a few more days, its almost a relief to not have to keep checking the scale every week!
We feel fairly confident that Logan must be gaining though in the past week. The main reason being that he has been vomiting alot less and he is starting to take more volumes at his feed. He's only started taking an extra 10-20ml per feed, but for Logan this is a great step in the right direction. Baby steps....this is what we do each week, but someday he will catch up just like Malachi did :) We definitely have our challenging days just like any normal family, but the Lord continues to grant us much strength each day to take up our tasks that He has set before us in this season of our lives.
Next week Thursday we go back to Mac to meet with Dr. Bailey, as a follow-up for the g-tube. She just wants to take a look at it to make sure there is no infection & see how things are going with it. We look forward to meeting with her again, the woman has a heart of gold & has a passion for what she does. I will update the blog next week once we know for sure what Logan's weight is up to.
Until then enjoy the breath-taking beauty of God's creation in this snowy weather that we've received and we hope you all have a wonderful weekend.
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