Another Taste Of Freedom

No...not freedom from the hospital, freedom from the ng tube...AGAIN! I stand corrected when I said the other day that Logan pulled his tube out 16 times, the nurse checked and it was 17...and now today makes it 18!! Not that it makes a difference, thats just too many times! Yes, at 9:45am this morning he was just ticked right off, and then I seen him start to tug at the feeding tube, and for the first time ever I LET him. Yes, I stood there and watched him. He hates the ng tube,who wouldn't? It irratates his throat and he is absolutely miserable until he can pull it out again. To be honest there's not much I could have done anyways because it was half out by the time I noticed and the tape was no longer sticking. It was like a night and day difference. Logan is now completely happy to just kick back in his bed, free from the irratations of the ng tube, no wonder his throat is so enflammed.

Jacquie, our nurse that we have this morning is amazing. She completely agreed 100% with me that this is ridiculous, he needs a g-tube. She called the GI team to tell them she was not inserting another ng tube until they come up here to discuss what to do now. This ng tube is no longer going to work for him. In the meantime I just bought him some time and fed him an ounce from the bottle. Everytime Logan pulls the ng tube out he vomits for a day because it irratates him when they put it back in, resulting in no weight gain on those days. So yesterday and most likely today he will have no increase in weight because of the set backs of the ng tube being pulled out. I asked our GI resident how they are supposed to see a sufficient weight gain if this is happening every other day? I do not wish to sit here and watch this for the next few weeks, its just unessessary. She will talk to the GI doctor in charge (Dr. Brille) and he will come in within the next hour or so to disuss where to go from here. I plan to fight for the G-tube to be put in THIS week, which really shouldn't be a problem since last week they put Logan on a waiting list to have it done when the doctor's decided he should get it, and I want it done BEFORE the weekend so we can get going on this. It will take 2-6 days after he gets the g-tube put in to monitor him for infection, make sure he's taking the feeds well and to train us in how to work the g-tube. If we are just going to be monitoring Logan's feeds, slowly increasing them and introducing the bottle to him more each week, this is easily something I can be doing at home with the help of the in home care from CCAC (Community Care Access Centre) that we have. I do not wish to sit here and do that from the hospital for another few weeks, thats ridiculous. So like I said, unless it is life threating or necessary, I want them to get the g-tube surgery booked asap and get us out of here. Ok, ok so I sound all firm on the blog, and it worked when I said this all to the resident, let's see if I can do it with the GI doc. Adam says to be firm, don't back down or take no for an answer, obviously still doing this all in a Christian like manner. It's time for this mama to get the ball rolling again.

I'll update you all later today or tonight once we've reached a verdict on the plan for Logan getting the g-tube. In the meantime I thought you would enjoy these pictures of Logan's freedom once again! YES, I know he has the pink gown on, deal with it Leanne Kikkert, hahaha...they fit him the best! ;)

 

Just pulled the ng tube out and I ripped the tape

off his face...he wasn't too impressed.

Just doing my routine morning ab crunches!

 



 

Love this little man!

 

Just wanna squeeze them cheeks!!

 

Such a stinker! So happy to be free for a little while...