"Your love, O LORD,
reaches to the heavens, your faithfulness to the
skies.Your righteousness is like the mighty mountains,
your justice like the great
deep. O LORD, you preserve both
man and beast. How priceless is your unfailing love!
Both high and low among men
find refuge in the shadow of your
wings."
Psalm 36: 5-7
Today was a great day. It's very rare that I've said that, but really how often can you have a "great day" in the hospital? One of my dearest friends Jocelyn told me last night to find joy in the small things today. Thank-you Jocelyn, it was a great reminder and that is exactly what we did. For once I didn't dwell on the negative aspect of our situation, instead we forgot what we are dealing with and just enjoyed our day together!Psalm 36: 5-7
This morning we took Logan for a nice long walk through the hospital to see his nurses in 3b from the first admittance. As much as they'd love to see us go home soon, they also love seeing his face light up with big smiles whenever he sees one of them. They've come to a conclusion that he is a big flirt, a charmer and LOVES the ladies. hehe. We then stopped for coffee at the Ronald McDonald room in the hospital for a coffee & treats that were once again graciously donated from Starbucks & cookies from the girl guides that came to sing carols for us .
At 10am we met with our social worker to express our feelings of frustrations and idea's, she was able to advocate for us to Dr. Brille before we were to meet with him after lunch. We had a great talk and it was really good to get it all out on the table. We had a busy morning as just after our meeting ended, in walked Santa Claus! He came to the lounge today to read all the letters that the kids wrote and put in his mailbox here at the hospital. He then went to each room to bring the kids a gift and get a picture with Santa! Of coarse Logan is really little & doesn't understand, but his mama is one BIG Christmas fanatic! If you know me well enough, you know I enjoy every little detail about the month of December. It's infact my favorite time of the year :) So yes, I got Santa's little elf helpers to take a picture of him with Santa Claus for his memory box that we've made from the hospital. Logan liked Santa's beard and started trying to eat it - so typical of him to put everything in his mouth. All we could think was better Logan then Olivia, she'd probably try to pull his beard right off!! The quality of my picture isn't that great since I took it on my phone, but they printed one off for us and it is adorable!
After a busy morning we had McDonalds for lunch, which was also donated to the hospital. It is amazing how special Mac tries to make Christmas and they're stay in general. Although the days are long and often monotonious, the staff here at Mac has been great to us and we've made friendships with some of the nurses, child life specialists, O.T.'s, dieticians and more. And after the afternoon we had with Dr. Brille we may have made another friendship! Dr. Brille came by to see us around 3pm to chat. Thanks to the residents, our nurses, our O.T. & our social worker who advocated for us & really filled the doctor in on how we were feeling and our game plan, the meeting went surprisingly well. We were prepared to have to be firm and fight for Logan to get the g-tube or go home on the bottle this weekend, and we didn't even have to. Dr. Brille told us he is actually happy with even the little bit of weight gain Logan is having and that he seems to be tolerating the bottle ok, so he is willing to discharge us tomorrow as long as Logan still gains weight tonight. If he loses weight then we won't be going anywhere, but we are pretty confident that Logan had a good day & will do well. We'll know by 9pm tonight!
If we are discharged tomorrow Logan will go home on bottle feeds every 2 hours. We will work with a dietician to increase these feeds and push them to every 3 hours (for my sanity!) and to increase the calories so Logan will gain faster and be up to where he needs to be. We will give it a couple of weeks and if the bottle feed doesn't seem to be going as great as we hope for, then Dr. Brille will have us come back after the holidays to get a g-tube inserted, no questions asked. He says by that point we will really have tried everything and it will be very evident that he would need a g-tube. But let's not think about that! We just hope & pray Logan continues to thrive on bottle feeds so we don't even have to go that route! Our dietician will come once a week, we will have appointments at Mac & with our pediatrician in Welland, and we will probably be extremely exhausted from feeding him every 2 hours. But honestly none of this matters, we are just so SO excited to be taking all our kids home again! Please kindly remind me of this when I'm home & going crazy again ;)
Today we received some AMAZING news! We are so thankful to hear that we can go home and we want to thank you all for the multitude of prayers that you stormed heavens gates with on our behalf. We pray that God continues to bless Logan & help him to grow & thrive. We also pray that this may possibly be the end of hospital stays, at least for awhile. When Logan starts on solid foods we will be coming back to meet with an allergist to test Logan and see what other sorts of allergy's he could have. We will also cross this bridge when it comes. One day at a time.
Dr. Brille just had one more question for us..."So are you done having children now?" Adam laughed, "Absolutely not. If the Lord decides to grant us with more children someday, we would be thrilled!" The doctors think we are nuts as this is something that can be hereditary and the chances of dealing with this in future children is quite high. "That's ok, this will never stop us from wanting to have more children, after all we've truly learned from this that the Lord will never give us more then we can handle." Dr. Brille just smiled, ok and chuckled a bit. I would love to know what he was really thinking!
PRAYING that Logan maintains his weight or goes up tonight because then tomorrow we are going home...PRAISE THE LORD!!
So happy to hear that you may be going home!! We will pray that Logan has gained weight and that if he hasn't, that the Lord will give you the strength you need to stay. Don't worry about all the appointments, they seem like nothing compared to being there all day :) Hope to hear some good news!!!
ReplyDeleteThis is GREAT news!!!!!!!!!!!!! I am SO glad that you got good news today! One of us had to and I am happy that it was you! You can do this Momma!!!!!!!!!!!
ReplyDeleteYAHOO!!!!
ReplyDeleteWaiting with bated breathe to see if you will be returning to delightful dunnville !!
ReplyDeleteSo glad to hear!!! What a great Christmas gift; truly is a magical time of year :)
ReplyDeleteIm not sure what Logan's protein allergy means for the future, but I worked with a little boy who had a protein allergy (i think it builds up in his blood) and anyway, he's the most charming and funny little boy! (Just like Logan it sounds!). There is a bright light at the end of the tunnel; keep hanging in there!
Merry Christmas!