More GREAT News

"I thank You and praise You, O God of my fathers; You have given me wisdom and might, And have now made known to me what we asked of You..." - Daniel 2:23

Adam & I have so much to be thankful for! Praise be to our father in Heaven for answering prayers. Logan's results came back from the MRI and they said, quote "Logan is unremarkably healthy, this baby is brilliant and completely fine." Wow, this was such a relief for us to hear! Now of coarse he may be healthy, but we still don't believe he is completely fine considering he has a protein intollerance, but healthwise he has a clean bill of health.

The GI team gave us a plan of what to expect over the next week. We are going to keep him on continuous feed until Sunday night and monitor how much he gains over the next few days. On Monday they will start small bolus feeds and try to get him to get back to feeding every 3 hours. They have high hopes that Logan will do just fine from what they see already. Since we've switched the formula he has had no spit-ups and is finally having regular bowel movements (2 a day to be exact!). This is a sure sign that he is starting to absorb the nutrients & pass them through with no problems. Who knew you could get so excited over your child having a BM?? haha. Logan also went up in weight by 50 grams last night. Apparently they expect his weight to go up by at least 30 grams a day for the next litte while, so since he has gone up more then expected already the first night, we are off to a great start. Way to go Logan!!

Once we can get Logan back to handling his feeds every 3 hours we will try to see if he can handle the entire feed by bottle. If for some miracle Logan can take the entire feed by bottle, without spit-ups or being fussy we will be able to take him home without a feeding tube. They've told us not to get too excited as its not likely this will happen, but we do have to try before just sending him for surgery to get a g-tube. That's our next option...if he can not handle his feeds from the bottle at that point, then he will go for general surgery to get a g-tube inserted through his stomach. The fact that he currently takes 1 ounce, twice a day from the bottle is already a great thing! This formula that he is on (Nutrimigen AA) tastes so incedibly awful because it has been broken down so many times for him to digest it. Most babies reject it from a bottle because it tastes so awful, but not Logan - he chugs it back no problem. Thats our boy! Hopefully this continues and doesn't become a problem of rejection.

We are looking at another 2-3 weeks here at Mac. They are trying to get us home for Christmas, but I told them today that as much as we'd love to be home for Christmas, I don't want to get rushed home and end up having to come back. I'd like to make sure that we get this all sorted out and have Logan on the right track before we get discharged. Not gonna lie though, I can't wait to get out of this place!! As wonderful as they've been to us here, its time to go home and try to be normal again. I just keep telling myself, each day that goes by is another day closer to being home. :)

We realize that things could have been much, much worse so we are very thankful that this is somewhat of an "easy" fix. To be honest, I felt like maybe we made a big deal out of nothing. Our doctors have assured us that we absolutely did NOT make a big deal out of nothing. Our child was not thriving or growing, and though it may be be something as simple as changing his formula & giving it time, had we not taken him in and pushed for them to find answers, he may not be doing as good as he is now. It would have been worse had we ignored it. That makes me feel better now that we took him to Mac in the first place. This has been a long & challenging road of ups & downs, but through the strength given to us by the mercy of our Heavenly Father we got through this. This does not mean that it will always be easy from here on out, but we know that through this we have learned better how to deal with these bumps in the road and hope that it will stick with us always. We will have challenging days that lie ahead when we go home as well, so we ask you to continue to keep us in your prayers that we are able to settle again into somewhat of a routine again with our 3 blessings, and that the Lord will grant Adam & I patience as we deal with Logan's feeding issues from home for the next little while as it will consume alot of our time.

I've learned alot through this trial that we've walked for the last little while. We've come to realize that sometimes God takes us to a place where we have nothing to rely on but faith, in order for us to truly see His glory and just what an awesome God He is! I've learned never to take your children for granted. Cherish the meal times, bedtime stories, the crazy unplanned dances in the kitchen, the time spent building forts & playing tea party with your kids, the voice of your little ones saying "I love you mum & dad, good night and good morning hugs and kisses that we all so often take for granted. We've learned that God, our gracious and merciful Father keeps his promises when He says, "Never will I leave you; never will I forsake you"... Heb 13:5a. He continued to grant us the strength to get through each day and when we were tired He picked us up and held us in His Hand, carrying us on. I always said I didn't think I could ever be that parent that sits in the hospital with a sick child, and yet the Lord proved me wrong through his grace and says, oh yes you can! I’ve discovered that the heart truly knows no bounds, that love is infinite, that I have more strength and patience than I have ever known. I have experienced the deepest emotions. I have been tired beyond anything I could ever imagine! But I have been graciously-crazy excited to have a loving, faithful husband and our 3 beautiful children in my life and I know that I will leave here with a whole different perspective on life.

Thank-you Lord for teaching me that tomorrow doesn’t matter, to grab today by the horns and live it to its fullest. To our children, Logan, Malachi & Olivia I cannot say enough about how you are a treasured gift from God. You were made by a loving creator and fashioned to be an image bearer of a unbelievable God. I love you more than you could ever know and as long as I have breath in my body, I will be here for you. I hope this is evident in how much I have fought for you in the last couple of months Logan! :)

I'll leave you with this poem that someone sent to me at the very beginning when this all started. I wrote it out & carried it with me in my pocket everywhere I went. Thank-you so much to the special person that sent this to me, it was a great reminder for me and helped me on my most hardest days.

 

 

He Maketh No Mistake

“My Father’s way may twist and turn
My heart may throb and ache;
But in my soul I’m glad to know
He maketh no mistake.

My cherished plans may go astray,
My hopes may fade away;
But still I’ll trust my Lord to lead
For He doth know the way.

Though night be dark and it may seem
That day will never break;
I’ll pin my faith, my all, on Him
He maketh no mistake.

There’s so much now I cannot see,
My eyesight’s far too dim;
But come what may, I’ll simply trust,
And leave it all to Him.

For by and by the mist will lift,
And plain it all He’ll make;
Through all the way, though dark to me
He made not one mistake.”